Jack had a GREAT day today! Ok, 'great' being relative...BUT his pulse, BP, Ox level were right on target! He's still on oxygen thru a trach and he's still sleeping but his bleeding with his trach was much better today and, while he stirred, he rested well. In fact, he did so well that they are moving his trial off of the vents to two hours, two times a day. When someone has been on the vent for an extended period of time, they need to be weaned off of the vent. The vent makes the strongest man lazzzzzyyyyyy. Heck, it breathes for him! In, out, in,out...Jack's lungs got lazy too. Lungs can lose flexibility. Weaning him gives him a chance to build up his strength both in his mind and body. Slow but steady...he has been off of the vent once a day for an hour a day for about a week now, so, it's a good improvement! As I said before, ARDS is a day by day challenge. This day has been pretty good...so, if tomorrow has it's setbacks I can look back and see that we DO have progress - regardless of how small. As is ARDS...
I have to say, once we can settle down I plan to look into how ARDS is being researched. Once upon a time Polio or breast cancer needed advocates. I see a need for both research and information, and I hope I can help.
Aunt Marcia and Uncle Dave came up today and provided a much needed distraction. Aunt Betty has come to support us as well. How WONDERFUL it is to have family! It makes it easier for us all. Thank you!
As far as commenting is concerned- Aunt Betty said she couldn't comment on this blog due to technical issues. I will look into it and let you know! : )
Monday, May 11, 2009
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